Inside Fair Lawn: Angelman Syndrome Awareness
Wayne Robbins sat down at Empress Diner in Fair Lawn to speak with resident Heather Polyi about supporting her daughter, Lyra, who has a rare neuro-genetic disorder called Angelman Syndrome.
Inside Fair Lawn's Wayne Robbins filmed a chat this weekend with resident Heather Polyi and her family at the Empress Diner about bringing awareness to a rare neuro-genetic disease called Angelman Syndrome.
Polyi, who owns the River Road makeup studio, Glam Spot NJ, has a two-year-old daughter with Angelman Syndrome named Lyra. At nearly three years old, Lyra cannot sit independently, crawl or walk, or feed herself. She still drinks from bottles (that she cannot hold) and eats pureed food, Polyi explains on the Facebook page she created for her daughter.
Last Friday, as part of the first annual International Angelman Day, roughly 100 participating Ruby Tuesday restaurants around the country partnered with the Foundation for Angelman Syndrome Therapeutics to donate 20 percent of proceeds to AS research. Empress Diner also contributed a portion of their proceeds on Friday to AS research.